Additional Resources
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Helpful Websites
Youth Perspectives on Mental Illness and Recovery:
General Information about Psychosis:
-Experiences of Emerging Psychosis and Personal Stories
-Information of Treating Psychosis
On Lowering Risk for Schizophrenia:
-Personal Prevention and Risk Reduction
Information about Bipolar Disorder:
-Information on Prevention Strategies for Bipolar Disorder
-General Wellness and Recovery Strategies for People Struggling with Mental Health Issues
Medication Information:
Video about Life with Schizophrenia:
-Living with Schizophrenia: A Call for Hope and Recovery
Taking Care of Your Mental Health on Campus/Resources for Students:
-The Transition to Adulthood Rehabilitation Research & Training Center
Books
Information & Support:
Copeland, M.E. (1997). Wellness Recovery Action Plan. Peach Press.
Friedman, M. (2000). Everything You Need to Know about Schizophrenia. New York: The Rosen Publishing Group.
Greenberger, D. and Padesky, C. (1995). Mind Over Mood: Change How You Feel by Changing the Way You Think. New York: The Guilford Press.
Hayes, S. (2005). Get Out of Your Mind and Into Your Life: The New Acceptance and Commitment Therapy. Oakland: New Harbinger Publications.
Morrison, A., Renton, J.C., French, P., and Bentall, R. (2008). Think You’re Crazy? Think Again: A Resource Book for Cognitive Therapy for Psychosis. New York: Routledge.
Temes, R. (2002). Getting Your Life Back Together When You Have Schizophrenia. New Harbinger Publications.
Autobiographies/Memoirs:
Jamison, K.R. (1995). An Unquiet Mind. New York: Knopf.
Katz, B. (2004). I Think I Scared Her: Growing up with Psychosis. Xlibris Corporation
Olson, L.S. (1994). He Was Still My Daddy. Portland: Ogden House Publishing Co.
Saks, E.L. (2007). The Center Cannot Hold. New York: Hyperion.
Schiller, L., & Bennett, A. (1996). The Quiet Room : A Journey Out of the Torment of Madness. New York: Warner Books Inc.
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Websites
General Information About Psychosis
-National Alliance on Mental Illness (NAMI)
-WPA International Program to Fight the Stigma and Discrimination of Schizophrenia
-British Columbia Schizophrenia Society (BCSS) Family Toolkit
-EPI Dealing with Psychosis Toolkit
-BCSS, “Basic Facts About Schizophrenia”
-BCSS, “Schizophrenia: General Resources”
-BCSS, “When Your Sibling Has Psychosis” (For Children)
-BCSS, “When Your Sibling Has Psychosis” (For Teens)
-Our Healthy Minds: Living with Mental Illness – A Guide for Families and Friends
General Resource for Family and Friends
-Information for Individuals and Families about Internal Experience
-Treatment Programs across North America
-National Institutes of Mental Health (NIMH)
-Brain and Behavior Research Foundation (BBRF; formerly NARSAD)
-Early Psychosis Intervention (EPI)
-Substance Abuse and Mental Health Services Administration (SAMHSA)
-Physician’s Desk Reference for Consumers
-National Institutes of Health (NIH) Consumer Health Information
-Massachusetts Department of Mental Health (DMH), “Consumer and Family Resource Guide”
-Supporting Students Experiencing Early Psychosis in Middle School and High School (SAMHSA)
-Engaging with Schools to Support Your Child with Psychosis (SAMHSA)
Videos
-Collection of Schizophrenia Audio & Video Files
-Introduction to the Portland Identification and Early Referral Program (PIER)
-PIER, “Schizophrenia Explained”
-PIER, “Early Intervention in Psychosis: What You and Your Family Should Know”
-Leap Institute, “I’m Not Sick, I Don’t Need Help!”
-Leap Institute, “Living with Schizophrenia: A Call for Hope and Recovery“
-Cultural Institute at King’s College London, “Compassion for Voices: A Tale of Courage and Hope”
Books
Information & Support
Amador, X. (2000). I am Not Sick. I Don’t Need Help! Helping the seriously mentally ill accept treatment. Peconic: Vida Press.
Dickens, R. & Marsh, D. (Eds.). (1994). Anguished Voices: Siblings and Adult Children of Persons with Psychiatric Disabilities. Boston: Center for Psychiatric Rehabilitation, Sargent College of Allied Health Professions.
Marsh, D.T. & Dickens, R. (1997) How to Cope with Mental Illness in Your Family: A self care guide for siblings, offspring, and parents. New York: Jeremy P. Tarcher/ Putnam.
Mueser, K.T. & Gingerich, S. (2006). The Complete Family Guide to Schizophrenia: Helping Your Loved One Get the Most Out of Life. New York: Guilford Press
Temes, R. (2002). Getting Your Life Back Together When You Have Schizophrenia. New Harbinger Publications.
Torrey, E.F. (2001). Surviving Schizophrenia: A Manual for Families, Consumers, and Providers (4th Edition). New York: Harper Collins Publishers, Inc.
Autobiographies/ Memoirs
Jamison, K.R. (1995). An Unquiet Mind. New York: Knopf.
Katz, B. (2004). I Think I Scared Her: Growing up with Psychosis. Xlibris Corporation
Olson, L.S. (1994). He Was Still My Daddy. Portland: Ogden House Publishing Co.
Saks, E.L. (2007). The Center Cannot Hold. New York: Hyperion.
Schiller, L., & Bennett, A. (1996). The Quiet Room : A Journey Out of the Torment of Madness. New York: Warner Books Inc.
Sexton, L.G. (1994). Searching for Mercy Street: My Journey Back to My Mother. Boston: Little Brown & Co.
Simon, C. (1997). Mad House: Growing up in the Shadow of Mentally Ill Siblings. New York: Penguin Books.
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Websites
General Information
-RAISE Early Treatment Program
-Information for Providers including manuals and guidelines to treatment resources
-Society of Clinical Psychology – Evidence-Based Treatments
-Society of Clinical Psychology – Family Treatments for Bipolar Disorder
-Society of Clinical Psychology – Family Treatments for Schizophrenia
-Cedar Clinical Brief- Discussing Diagnosis of Early Psychosis with Youth and Families
Relevant research on early intervention/prevention:
-Cognitive Therapy May Prevent High Risk Populations from Developing Psychosis
-Early Treatment Confirmed as Optimal for Best Outcome
-Omega-3 Fish Oils Tested as Preventative Approach to Schizophrenia with Positive Results
For Medication Information
-Physician’s Desk Reference for Consumers
-National Institutes of Health (NIH) Consumer Health Information
Free Video Presentation Available Online
-Collection of Schizophrenia Audio & Video Files
-Introduction to the Portland Identification and Early Referral Program (PIER)
-PIER, “Schizophrenia Explained”
-PIER, “Early Intervention in Psychosis: What You and Your Family Should Know”
Leap Institute, “I’m Not Sick, I Don’t Need Help!”
-Leap Institute, “Living with Schizophrenia: A Call for Hope and Recovery“
-King’s College London, “Compassion for Voices: A Tale of Courage and Hope”
Promoting Emotional Health on Campuses
Books and Articles
General Information
Amador, X. (2000). I Am Not Sick, I Don’t Need Help! How to Help Someone with Mental Illness Accept Treatment. Peconic: Vida Press.
Iati, C.A. & Waford, R.N. (2015). The Psychosis Response Guide: How to Help Young People in Psychiatric Crises. Springer Publishing Company.
Li, H., Pearrow M., & Jimerson S. (2010). Assessing, identifying, and treating early onset schizophrenia at school. Springer Publishing Company.
Mueser, K.T. & Gingerich, S. (2006). The Complete Family Guide to Schizophrenia: Helping Your Loved One Get the Most Out of Life. New York: Guilford Press
Temes, R. (2002). Getting Your Life Back Together When You Have Schizophrenia. New Harbinger Publications.
Torrey, E.F. (1995). Surviving Schizophrenia: A Manual for Families, Consumers, and Providers. New York: Harper Collins Publishers, Inc.
Selected Literature on Family Therapies for Psychosis
Dixon, L., Adams, C. & Lucksted, A. (2000) Update on family psychoeducation for schizophrenia. Schizophrenia Bulletin, 26(1), 5-20.
McFarlane, W.R. (2002). Multifamily groups in the treatment of severe psychiatric disorders.New York: Guilford.
Miklowitz, D. J., & Goldstein, M. J. (1997). Bipolar Disorder: A Family-Focused Treatment Approach. New York, NY: Guilford Publications.
Mueser, K.T. & Glynn, S.M. (1999). Behavioral Family Therapy for Psychiatric Disorders.Oakland, CA: New Harbinger Publications.
Selected Literature on Individual Treatments for Psychosis or Risk
French, P., & Morrison, A.P. (2004). Early Detection and Cognitive Therapy for People at High Risk of Developing Psychosis: A Treatment Approach. West Sussex: John Wiley and Sons, Ltd.
Morrison, A.P., French, P., Parker, S., Roberts, M., Stevens, H., Bentall, R.P. & Lewis, S.W. (2007). Three-Year Follow-up of a Randomized Controlled Trial of Cognitive Therapy for the Prevention of Psychosis in People at Ultrahigh Risk. Schizophrenia Bulletin, 33(3): 682-7.
Morrison, A.P. (2003). A Casebook of Cognitive Therapy for Psychosis. New York: Brunner-Routledge.
Selected Literature on Medications
Marder, S.R., Essock, S.M., Miller, A.L., Buchanan, R.W., Davis, J.M., Kane, J.M., Lieberman, J., Schooler, N.R. (2002). The Mount Sinai conference on the pharmacotherapy of schizophrenia. Schizophrenia Bulletin, 28(1);5-16.
Sachs, G.S., Printz, D.J., Kahn, D.A., Carpenter, D., Docherty, J.P. (2000). The Expert Consensus Guideline Series: Medication Treatment of Bipolar Disorder.
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Center For Early Detection, Assessment & Response to Risk (CEDAR):
The CEDAR clinic is a clinical program of The Brookline Center for Community Mental Health and is specialized in the evaluation and treatment of youth at risk for psychosis.
Massachusetts Psychosis Network for Early Treatment (MAPNET):
MAPNET is a technical assistance program for first-episode psychosis programs in Massachusetts. You may find a list of first episode programs on their program directory.
The Resilience and Prevention Program (RE-SET):
RE-SET is a Massachusetts General Hospital clinic that specializes in the evaluation and intervention for young people at risk for psychosis.